I spent a long time not knowing that I had Dystonia and once that I found out what I had I put a name to it to survive.Frederick is my constant companion always a pain in the side.
The picture with my grandsons and me made me look fatter as I had to wear my brace that rolls my body around. I have 4 braces and depending on Frederick's mood is the one I wear and somedays I don't go out as no brace feels good.
It's the same way with the leg/foot and hand I live by Frederick's rules but I also live by my rules he cannot stop me and if you allow your illness to take you over it will win.
I take everyday as it comes and after 20 years of this I should know that there are certain things I can't do but I still do them as I will never let Frederick win I adjust my days so I can do things that need doing and I rest when I need to.
Can't,won't and quit are not in my head so I just keep going.
Dystonia comes in many different ways and no one is the same so each of us are unique and never should be judged as like people with Dystonia all people are different. VA
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