I am at the point of which way am I to go the easy way or the way of keep making the phone calls,letters,and everything else I have been doing to get Dystonia Awareness out or just quit as everything is falling on deaf ears and blind eyes. NO one cares anymore and with everything happening in peoples lives all the people suffering from Dystonia but being told to go home and take this pill you will feel better has to STOP!!!!!!!!!!!!!!!!!!
I have never been one to quit but after having Dystonia as long as I have my brain is aging and I feel Frederick coming into more muscles and I fight everyday to keep him at bay
People need to listen and learn and put someone else's needs before their own.
Today is Father's Day and at a very young age the motto in our home was "no work no eat" and "to buck up"Well I'm Bucking up and I am going to break down doors as there are so many that are or will be going through the nightmare of Dystonia and it needs to become in the same league as Parkinson's so there is a central place that people can learn and help one another instead of hiding or only helping themselves.
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