I will be so happy when this week is over maybe next week will be better.
I had a stick or thorn that hit me in the upper chest and is now infected and then the bandaid bubbled my skin so used paper tape and even that bubbled my skin. Thursday stung by a bee on left arm couldn't find meat tenderizer or Benedryl so my arm swelled are is now muscle is inflamed.I am hoping I don't have to go to ER but have feeling I will be I had an infection when I see my dr and on Cipro 500mg twice aday been on a week and still a week to go .
I am getting alittle upset as I feel no matter what I do something is making everything worse.
Maybe my body is tired and I need a good dose of iv meds to fight whatever little bug is wearing me out and I hate to get that much antibiotics as I have a little germ carrier with John kids get all kinds of stuff and of course brings it home.
I guess time will tell as if not better off I will go.
Blessings

I should be writing more but always something keeps me away John is back in school and I am slowly getting everything put back after floors were done then dryer kicked the bucket so something else to deal with.
I am facing some real changes with my Dystonia as my meds are going wacky and need to wean down ,also creeping alot more into my neck and face so if I keep up I will becoming the human letter C
When the drs tell me what is happening I look at it as I always have I will win.Frederick can have alittle more of me but not as much as he wants.
Now its more tests and the most dreaded of all EMG lovely sticking needles into my muscles to see what is going on as if they can't see.Not many things scare or upset me but with all the new tests I know that I have to admit to something that has been going on for quite awhile.
This is not going to stop me from doing what I have to do just another SPEEDBUMP in the road.
Blessings

So many ask me how I stay strong when so much is happening in my life and not only is it my faith but sayings, cartoons and songs.
So many at the Olympics have Ipods well I still have my record player,cassette player and cd player music is a major part of my life.Ipods scare me John could run it, me I'm still trying to master computers.
The on thing I do know is you have to embrace your disorder and make it a part of you and learn how to work it to you advantage because the more you fight it ,it wins.

I am sitting on my deck trying to get organized at least I got my Avon order done,I am hearing the sanders and compressor noise in my ear I am happy that getting hardwood floors but also know that I need them when Mark my brother legs finally give out. He has about 20% blood flow below the knees and leg ulcer broke open again so high antibiotics and praying that the infection didn't go to the bone lucky it didn't.
When I went to Florida in 91 to get my Dad set up in hospice I gave him my word that I would take care of Mom and Mark. At that time I didn't know I would be raising my grandson John.
If you have faith you believe that God only gives what you can handle and I keep that in my head all the time.
Mark could be one of the homeless veterans This is why I fight for our armed forces and children and Dystonia.
I pray that Mark doesn't let depression get him down and why I fight so hard to keep him moving.
I also pray for the vets that are alone and hope they don't feel so alone.

Getting JD all settled and all I can say is that JD is one of the first people that knows alot about me that I don't speak about .
I have fought so long to hide and mask my Dystonia as I found out all about prejudice when I got sick and gained so much weight.
No matter what I do I can't loose weight and after all the steroids that didn't help.
I try to keep as active as I can be everyday is different so I have learned how to survive with Frederick.
I am in control of my life as long as I don't allow myself in self pity. There has only been a few times that I have been ready to throw in the towel but that made Frederick so happy as my muscles beat me up.
I hardly ever have a poor me day and having a very active grandson who is a natural at sports , school work soon and also my brother Mark with his legs an ulcer has opened up again and have to be so careful as he could loose his legs .
I only do as much as I can and just start each day over again.If you allow everything to upset you,you can't function so it is a learning process to find that fine line and do only what you can.
Blessings

It is finally raining here all rain usually going around us but I still feel it.
I am facing again more challanges as my meds are still funky and it is harder to control the tightening and spasms of my muscles .I stay just close enough to that fine line to make sure that Frederick's full power doesn't come out but sometimes you have to make choices to help other people and going to IN and back in 3 days was something I had to go to make sure a friend would be ok.
We all come to these choices and we are so much a world of only look out for ourselfs that you forget what you should do.
I will always be the helper,giver, caring person that I have always been and that is something Frederick and buddies can't take away from me

Chaos

Well my life has been turned upside down and in and out.
I drove to IN to get JD and her Mom wound up driving back a 26th ft u-haul and now to get her moved in and life for JD should get better.
My home is a mess as putting down hardwood floors and still have to sand and seal.
One way to clean out and get rid of stuff.
Once all done I will have a clean house and will have great floors as bought flooring from a basketball court that was being tore up. I still recycle and got thicker floors than planned and alot cheaper.
Once I get Frederick back on track I can start doing the things that need doing .
John is now 9 and starts school the 25th. He got all the electronic gadgets and games he wanted.
I will be writing more soon as I will be starting a new journey with my Dystonia and all I can hope for is that I don't wind up in a scooter but I will keep going as long as I can as DYSTONIA needs to be learned about.
Blessings
Vickie Ann