Well I was going to start writing more but then a sick boy so John has been out of school all week sinus infection cough, fever the whole bit.
So I didn't sleep much as that is all you hear is a child breathing,it's a Mom thing even though some Dad's do this also.
Just made for a long week.
I just keep puttering getting things done for Dystonia awareness, getting everything in order and cleaned up at home .
I didn't know it took so much work to seek simplicity, to get your home clean of years of stuff you have saved but then don't know why you did.
I don't need alot of the stuff that is in this home and if I haven't worn, seen or used in a year it's gone.
I still have all the pictures to go through but that will come with time.
As long as I don't overdo it will get done.
Blessings
1 comment:
Thank you for your blog, I am in the begining stages of learning that I have dystonia. After six doctors that have no clue what to do with me, it was my physical therapist that said, "I think this is more than torticollis, I think you have dystonia." I've only been dealing with this for six months, my PT introduced me to a woman that has had this for four years. We met for the first time today for coffee, she had never met anyone in the last four years that had this until now. I have been a healthy person my whole life until this happened. I didn't even have a primary care physician, as they call them. I must admit that I am outraged at the experience I've had so far in the healthcare system and the doctors I've seen, I've yet to find one that gives me more than four minutes of their time. Since I don't have experience in this arena, I've had to learn how niave I was about the medical profession, I'm sure their has to be someone out there that cares, I just havn't found one in my area. Still, meeting my new dystonic friend today, and hearing her stories of going through this alone for four years, gave me hope and the idea to search for blogs on the subject, I knew we couldn't be alone in this. So, I just really wanted to say thank you for posting.
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