I enjoy my life so much and always try to find something good each day.
But days like this will bring the strongest person down.
It's cold today and Dystonia is giving me a hard time.
I have 4 back braces and it's always fun trying to see which won't drive me nuts when put on.Between spasms and twisting my skin crawls.
Dystonia is bad enough but all the stuff that comes along is worse.
Not everyone will get the domino effect but some do so they will understand where I'm coming from.
My joints are tight, nerve pain, neuropathy all not fun .
One thing I have learned is take each day as is comes,don't get upset as tomorrow will be a better day.
Blessings
Sunday, March 29, 2009
Thursday, March 26, 2009
New Beginnings
I have not been on for awhile as got some nasty side effects from meds so am weaning off them.
This time my head and left eye took the blunt of the pain.At least it didn't bother my balance but double vision isn't much fun.
I am still having headaches and realise that will be for awhile so luckly I have learned to take everyday as it comes.
I'm not driving and don't miss going where I don't need to go.
I am going back to what I first learned when Dystonia came to my life.
You have to listen to your body and don't overdo as that doesn't help in the long run and it took me awhile to learn that and many nights of Frederick Dystonia twisting my body around.
I am redoing my life. I am cleaning up the clutter in my life .
I am working on John's school papers and making folders of all his special ones.John is in 4th grade and time does fly .
John will be 10 in August and when he was brought home I put my life on hold as he needed my attention.Guess what I didn't miss all the excess stuff that I had been doing.
I am going back to that I will continue to do stuff for Dystonia Awareness as so many need it but I'm not going to travel.
All that I need to do I can do from here and this way I can control my muscles as much as I need to as I don't want to take any meds for awhile.
This is my decision and I will try to go as long as I can without meds
Dystonia is not friendly but as I have to live with it I have had to make it my friend.
This time my head and left eye took the blunt of the pain.At least it didn't bother my balance but double vision isn't much fun.
I am still having headaches and realise that will be for awhile so luckly I have learned to take everyday as it comes.
I'm not driving and don't miss going where I don't need to go.
I am going back to what I first learned when Dystonia came to my life.
You have to listen to your body and don't overdo as that doesn't help in the long run and it took me awhile to learn that and many nights of Frederick Dystonia twisting my body around.
I am redoing my life. I am cleaning up the clutter in my life .
I am working on John's school papers and making folders of all his special ones.John is in 4th grade and time does fly .
John will be 10 in August and when he was brought home I put my life on hold as he needed my attention.Guess what I didn't miss all the excess stuff that I had been doing.
I am going back to that I will continue to do stuff for Dystonia Awareness as so many need it but I'm not going to travel.
All that I need to do I can do from here and this way I can control my muscles as much as I need to as I don't want to take any meds for awhile.
This is my decision and I will try to go as long as I can without meds
Dystonia is not friendly but as I have to live with it I have had to make it my friend.
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